Zprávy 2017

6.1.2017

Carlsbad Mineral Water

We would like to thank Carlsbad Mineral Water for deciding to help little Elizabeth with her illness – Epidermolysis bullosa, also called the “Butterfly children” disease.aquila-logo-webStory of little Elizabeth

Little Elizabeth was born in Sokolov in May this year. Immediately after her birth, she was transported to a hospital in Pilsen, because her right leg had a big blister. It was from the knees to the instep. Doctors have expressed suspicion of Epidermolysis bullosa. The little girl spent seven days in the hospital with her mother. When their suspicions were confirmed, she and her mother were transported to a specialized clinic in Brno.

When Elizabeth was a month old, she could go home with her mother. She had to learn how to take care of the little girl, how to re-bandage her and treat the blisters. After a month, they returned to Brno for a check up to learn that their baby girl suffers from a dystrophic form of the disease, which is considered the worst form. Elizabeth is a cute little girl, who, of course, like every baby rubs the feet together and also munches her eyes. This is all very dangerous for her because her skin is very fragile, just like butterfly wings. She tries to climb, but it is a problem for her, because she could scrape knees and blisters would form even more. And so the little girl must be under constant supervision from her mother who re-bandages her four times a week, and so that she won’t hurt herself, Elizabeth has bandaged hands or wears gloves. Elizabeth cannot use a pacifier, because she immediately started developing blisters in her mouth and then she cannot swallow.

Elizabeth needs treating material that is expensive and insurance does not cover it entirely. Of course she needs a large amount of it and often. As she grows, she will need more and more of it. Thanks to all who choose to help young Elizabeth!
elizabeth1-karlovarskemineralnivody-IMG_0760elizabeth2-karlovarskemineralnivody-IMG_4097aelizabeth3-karlovarskemineralnivody-IMG_4099aelizabeth4-karlovarskemineralnivodyelizabeth5-karlovarskemineralnivodyelizabeth6-karlovarskemineralnivody